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Personal Pages  (2)

Batten Disease - Wikipedia article explains what it is, symptoms, history, inheritance factors, diagnosis, and treatment. Includes links to additional information.
Batten Disease Information Page - Information sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
Batten Disease Support and Research Association - BDSRA goals, support groups, local chapters, and resources for parents and families of Batten Disease patients.
The Luke and Rachel Batten Foundation - Created to engage in education and medical research toward diagnosis, treatment and/or cure of Juvenile neuronal ceroid lipofuscinosis (Batten disease) and to assist persons with the disease.
The Natey Foundation - Information for parents and families of Battens victims.
NCL Resource: A Gateway For Batten Disease - Information for families and professionals interested in, or affected by, this disease or neuronal ceroid lipofuscinosis (NCLs). Includes what it is, genetics, research, treatment, and family support.