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Association for Spina Bifida and Hydrocephalus - UK website containing a large selection of informational articles and provides information about current research projects being funded.
Australian Spina Bifida and Hydrocephalus Association - National organization acting as the peak body for information and support. Provides opportunity to email questions to an expert, fact sheets and contact information.
International Federation for Spina Bifida and Hydrocephalus - World-wide umbrella organisation. Aims to disseminate information and expertise throughout the world to families, individuals, professionals and volunteers.
The Scottish Spina Bifida Association - Contact information for national office, family support services and fundraising.
Spina Bifida and Hydrocephalus Association of Canada - Information, current news, research grants and discussion forum. National organization.
Spina Bifida and Hydrocephalus Association of Ontario - Offers support and research into the causes and treatment. Includes FAQ, Medical Information, details of events and research programs.
Spina Bifida Association of America - Voluntary health agency dedicated to education, advocacy, research and service. Has a presence in more than 125 communities nationwide.